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#LongCovid

263 posts143 participants1 post today
Public
Denis - The COVID info guy -

More Australian doctors are leaving general practice to open long COVID clinics as demand surges.

GPs say they lack the time to diagnose the growing number of patients.

Specialists report wait times of up to 12 months due to a shortage of GPs trained in recognizing long COVID symptoms.

#LongCOVID @auscovid19

abc.net.au/listen/programs/am/

ABC listen · Shortage of Long Covid clinics - ABC listenAn increasing number of Australian doctors are walking away from their general practice to open their own long covid clinics.
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ahimsa

I encourage patients and allies who are feeling discouraged to join the Millions Missing 2025 campaign:

meactions.org/millionsmissing2

The SOS theme = "Save our support systems. Save our science. Save our society."

The main event is a protest on May 12 in Washington, DC. There'll be smaller events across the US. Or schedule a meeting with your local congress rep

Can't attend in person? Join in online on May 12

See the link for lots more ideas

Me ActionsTake Action for ME/CFSFor #MillionsMissing 2025, #MEAction is sending out an SOS.
#MEcfs#LongCovid#MillionsMissing
Continued thread
Public
ahimsa

Encouraging quote from Jamie Seltzer of #MEAction -

“MECFS researchers and advocates have been managing to do the impossible with next to nothing, and we will continue to do so ...

So for all of those folks with long COVID out there who are looking at this and feeling in despair, we have been here before and we have persisted …

We are unlikely to snap our fingers and find a cure, but that was always true, and advocates are going to keep fighting.”

#LongCovid#MEcfs#HealthCare
Public
Tom Kindlon

Possible link between steatotic liver diseases [SLD], severe COVID-19 and cognitive impairment in post-COVID-19 syndrome

link.springer.com/article/10.1

"PCS patients with and without SLD did not differ with respect to fatigue and functional status ratings"

#LongCovid #PASC @longcovid

SpringerLinkPossible link between steatotic liver diseases, severe COVID-19 and cognitive impairment in post-COVID-19 syndrome - InfectionPurpose Steatotic liver diseases (SLD) have become more prevalent over the last decade and are associated not only with cardiometabolic diseases but also with psychological symptoms (depression, fatigue). These symptoms are also common in post-COVID syndrome (PCS). Therefore, the aim of the study was to analyze the burden of SLD in PCS patients. Methods We systematically screened all PCS patients from our post-COVID outpatient clinic using transient elastography, structured questionnaires for neurocognitive evaluation and blood sample analysis. Controls without PCS and without known liver diseases were also recruited and assessed with the same approach. Results 560 PCS patients and 103 healthy controls were included. The overall prevalence of SLD was high in both cohorts (57 vs. 53%). PCS patients with SLD were more frequently male (41 vs. 24%), older (52 vs. 44 years) and had more cardiometabolic diseases (87.0 vs. 46.4%). Cognitive impairment was more related to SLD in PCS patients than in the no-SLD group (OR: 1.68, CI: 1.14–2.46, p = 0.008). The presence of SLD was related to severe COVID-19 with hospitalization (OR: 2.91, CI: 1.85–4.56, p < 0.001). Within 1 year of the follow-up, 152 of 289 patients described a resolution in PCS irrespective of the presence or absence of SLD (log-rank p = 0.96). Conclusions SLD is associated with severe COVID-19 and cognitive dysfunction in PCS. Longitudinal studies are needed to assess the role of hepatic steatosis, development of post-acute infection regulation (e.g., SARS-CoV-2) and to differentiate between SLD-associated symptoms and PCS.
Public
Tom Kindlon

The use of oral anticoagulation at the time of acute #COVID19 infection & subsequent development of #longCOVID / post-acute sequelae of #SARSCoV2 infection

link.springer.com/article/10.1

"We found no evidence that prevalent OAC at the time of acute #COVID_19 infection was associated with reduced risk of LC/#PASC”

@longcovid
#PwLC #PostCovidSyndrome #postcovid
#CovidBrain
@covid19 #COVIDー19 #COVID @novid@chirp.social #novid @novid@a.gup.pe #auscovid19

SpringerLinkThe use of oral anticoagulation at the time of acute COVID-19 infection and subsequent development of long-COVID/post-acute sequelae of SARS-CoV-2 infection - Journal of Thrombosis and ThrombolysisLong COVID (LC) or post-acute sequelae of SARS-CoV-2 infection (PASC) is defined as ongoing, relapsing or new symptoms/conditions persisting after an acute COVID-19 infection. Given the potential role of oral anticoagulants (OAC) in treating thrombotic sequelae of LC/PASC, we investigated whether prevalent OAC use at the time of acute COVID-19 infection was associated with reduced development of LC/PASC. Retrospective cohort study within the TriNetx network. The primary cohort was defined as adults with a confirmed diagnosis of COVID-19. We defined OAC users as those who had received OACs (either direct-acting OACs [DOACs] or vitamin K antagonists [VKA]) in the preceding 3-months and non-users as those without OAC use within the previous 12-months. The primary outcome was a composite of 9 features associated with LC/PASC We identified 38,409 DOAC users, 19,243 VKA users, and 2,329,771 non-OAC users with acute COVID-19 infection. After successful propensity score matching (PSM), we found an increased risk of LC/PASC features in those receiving DOAC compared to non-OAC (HR [95% CI] 1.50 [1.35 to 1.68], p < 0.0001), and in VKA users compared to non-OACs (HR [95% CI] 1.98 [1.78 to 2.20], p < 0.0001), while DOAC users were at reduced risk compared to VKA users (HR [95% CI] 0.71 [0.62 to 0.81], p < 0.0001). We found no evidence that prevalent OAC at the time of acute COVID-19 infection was associated with reduced risk of LC/PASC. Further work is needed to understand whether there is a role for OAC therapy in the management of LC/PASC.
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Jon Hancock

Now that my brief return to computer gaming is over, at least for now, I'm moving on to the next part of my plan to try to get my covid-muddled brain back on track: learning how to play the piano. Or, rather more likely, learning the most rudimentary elements of how to play the piano, and applying them in a not entirely satisfactory manner.

The aim is to do one month of practice, following a professionally published course. After that, if I can handle it, I'll see where I stand.

#LongCovid
Public
Lyndsay Barwell

Long covid exercise update: I gave myself a week to recovering from worsening pem.
I did the bike in a couch to 5k style (one minute on, one minute off) and did no weight lifting.
I took propanolol which enabled me to go significantly faster without raising my heart rate above 105. I wasn't sure if that was a good idea. Hard to find information.

Con't in comments.

#longcovid#PEM
Public
Tom Kindlon

Aotearoa New Zealand: A small step in New Zealand

Writing from Norway, patient/advocate and former HSEQ CEO Nina E. Steinkopf engaged with the Royal New Zealand College of General Practitioners, who investigated and subsequently removed endorsement of a Lightning Process article previously published in NZ Doctor.

melivet.com/2025/04/08/a-small

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@mecfs
#MEcfs

MElivet · A small step in New ZealandIn February 2025, a research article was published in the Journal of Family Medicine and Primary Care. The authors claim that the Lightning Process is an effective and harmless treatment for Long C…
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