Salt pills > electrolyte drinks
No I will not debate.
It's #skyrizi injection day.
I missed the morning appointment on my calendar and just happened to have a mental spark of "isn't that supposed to happen today?"
So I clearly need to do something better with my reminders/appointments/thingamajigs.
Anyway, it's out and coming to room temperature.
Still better than having to drive 2 hours for a 3 hour IV infusion, then 2 hours back (and after Benadryl!) like I was doing for Inflectra.
Aren't bodies fun?
This natural compound found in ginger might be a "better option" in IBD treatment than anything currently available since it doesn't interfere with the immune system or liver function, both of which can cause side effects, said Professor Henry Krause, of the University of Toronto.
#ginger #IBD #health #medicine #science #research
https://www.labroots.com/trending/cell-and-molecular-biology/28581/ginger-compound-help-relieve-ibd
What is the mechanistic link between the NLRP3 #inflammasome, #autophagy & inflammatory #bowel disease (IBD)? This study shows that VANGL2 reduces #IBD progression by recruiting the ubiquitin ligase MARCH8 to regulate NLRP3 activation via OPTN-mediated autophagy plosbiology https://plos.io/42FTqFO
Wow!
Linking a particular bacteria of the gut microbiome in a chain that could potentially be a source of major depression. Follow up research could also show how environmental contaminants combined with the metabolism of the gut microbiome could be linked to autoimmune and other conditions.
Science is amazing!
Can't wait to see where this drives other future research and, eventually, treatments.
https://hms.harvard.edu/news/drawing-line-gut-microbiome-inflammation-depression
@Mrfunkedude Pretty sure that's held by someone with #IBD.
There was a time during a flare when I visited the toilet 20+ times a day. None of them were ever short visits, either.
Skyrizi injection done.
A five minute process is so much easier than a three hour infusion. Or the one hour infusion at a facility two hours away that the initial Skyrizi startup process involved.
And, in the absence of pulmonary disease or lots of iron infusions, test the patient for hereditary hemochromatosis. HFE can be a compensatory mutation, sometimes revealed by effective
#IBD
therapy. More common than you might think, and worth treating before complications develop. 2/2
THREAD: If you see (1) a patient with
#IBD and active inflammation, but no iron deficiency nor anemia of inflammation/chronic disease, or (2) a patient put on effective anti-inflammatory therapy whose hemoglobin rises to 16 or more, consider the possibility that they are TOO good at absorbing iron. 1/2
Care Opinion Scot @CareOpinionScot
An author thanks staff @NHS_Lothian
#westerngeneralhospital for helping them to feel "heard, cared for and supported" throughout their #IBD journey. "The banter is second to none!" Read the full story https://careopinion.org.uk/1297216
One in four adolescents with heavy menstrual bleeding (#HMB) since #Menarche may have an inherited bleeding disorder (#IBD). Levonorgestrel-containing intrauterine devices (LNG-IUDs) are the preferred treatment for HMB in adolescents owing to the substantial and extended reduction in bleeding and favorable side effect profile.
I'm not sure how I feel about sharing my mental health and physical disability conditions and info or how much to do it in good taste.
On one hand I'm an extremely straight forward and obsessively honest person. I like sharing because it's genuinely just authentic for me and I also just have nothing to hide. In a way I'm doing it right now.
As well as, it's useful. Speaking up about disabilities can and does inspire others to feel more comfortable and confident about themselves, understanding they're not alone with their difficulties.
On the other hand, the victim card sickens me. I've had enough of being a victim. I've had enough of people feeling sorry for me and of identity based conversations saying that just because I have certain conditions it somehow gives me a greater right for attention or support when in reality so many people have massive difficulties that may not be as clearly diagnosable and still hugely impact their lives and the way they deal with failures and successes.
I am deeply grateful for the many people who have supported me because of my traumas, abuse, physical chronic illnesses and many trauma related mental disabilities. Empathy is powerful and when someone shares the least we can do is listen with open curiosity and kindness.
But if I keep emphasizing how much of a victim I am, I might just be a victim forever. If I keep inviting people to feel sorry for me, I might create a reality in which I'm forever weak. And is it my fault? No. But is it my responsibility to change it? Absofuckinglutely.
I'm already on this path but sometimes I stumble. Sometimes I still use the victim card with myself and others.
The line is thin but critical, between being aware and taking good care of my many disabilities, to letting them disable me completely, or even just, more than they must.
I may forever have times in which I'll suffer from OCD episodes, panic attacks, mental breakdowns and clinical depression. But I'll do my best to limit those symptoms as much as I possibly can and not allow them from avoiding me of a good life.
I will forever have NVLD, but instead of letting it define what I can or can not do, I'll find alternative ways to do and understand anything I need to achieve my goals.
I may forever suffer from IBD and anemia. But I'll do what I can to manage and if I find a way, heal. And as much as possible, as much as healthy, continue my life with those illnesses, and aspire for joy and health as much as anybody else.
I won't beg for government support of any kind, I'll never take a loan ever in my life, I won't depend mentally on loved ones. I know others may have to. I had times in which I had to as well. But as long as I can change my mindset and health to be more capable of full independence, I place my responsibility and focus on doing so.
I'm a fully independent business owner and I am happy. Inconsistently happy, struggling but happy, overly stressed but happy. In love and happy, studying and working what I love and happy. Living a very strange reality impacted by war but happy. And yes, I have illnesses. And yes, I have many disabilities. But as for my identity, I can recognize my illnesses and take care of them, but I am healthy, I am not ill. I can acknowledge and understand my disabilities, I have many differences and many things I can do better than others naturally and many that I am naturally a lot worse at than most people. But I am not disabled. In fact, I'm completely capable of reaching my goals, it just requires different ways which I'm creative enough to figure out.
It's very hard. It's mind shattering sometimes. It's my body crumbling other times. But it's the truth.
So here I give up my victim card in society and in front of myself and consider myself an equally capable human being.
Capable of artistic, financial and wellness growth.
Capable of everything I want, but most importantly - capable of good influence on others through art.
Yours,
Emmanuelle
The “OSINT Toolkit to Detect and Analyse IBD-focused FIMI”, authored by our researchers and published recently by the EEAS, explores the intersection of Foreign Information Manipulation and Interference (#FIMI) with Identity-Based Disinformation (#IBD) and provides guidelines for #OSINT investigations.
Explore the toolkit here
https://www.disinfo.eu/publications/how-to-detect-and-analyse-identity-based-disinformation-fimi/
On International Day of People with #Disabilities, I thought I'd share this article on #invisibledisabilities.
This individual has ME/CFS & ulcerative colitis
https://meassociation.org.uk/2021/10/invisible-disabilities-week-2021-jessica-logan/
#IDPD #IDPD2024 #IDPD24 #IDPWD #invisibledisability #Hiddendisability
#Hiddendisabilities @chronicillness
@spoonies
@disability
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#ulcerativecolitis
@ibd #ibd
Gut stress as in inflammatory bowel disease (#IBD) favors microbes that thrive more independently of other components of gut #microbiome.
https://doi.org/10.7554/eLife.89862.2
Was just ghosted by my gastroenterologist referalled nutritionist. Who needs food? Right‽
#ibd #lowfodmap #glutenfree #lactosefree #fml #muhc #montreal