Study Reveals Potential Pain Relief Strategies https://www.diningandcooking.com/2010558/study-reveals-potential-pain-relief-strategies/ ##inflammation #alcohol #caffeine #dairy #diet #endometriosis #EndometriosisPain #gluten #health #Mediterranean #MediterraneanDiet
Crippling pain hasn't slowed down Amber as she prepares to run 500km
By Bill Ormonde
Suffering severe pain from endometriosis, there are days when Amber Bryant can barely get out of bed. Yet she's about to run 500 kilometres "back home" to Broken Hill to raise money and awareness about the disease.
There could be a significant impact of #diet on #endometriosis pain, according to study with 2600 participants. Possible mechanism: good diet reduces inflammation-promoting gut bacteria. https://www.theguardian.com/society/2025/apr/05/major-endometriosis-study-reveals-impact-of-gluten-coffee-dairy-and-alcohol
Major #endometriosis study reveals impact of gluten, coffee, dairy & alcohol
“Foods that contain refined sugars, carbohydrates, unhealthy fats, dairy, red and processed meats … can create inflammation in the body. I would advise keeping a food and symptom diary, which will help to identify any food triggers that could be flaring symptoms such as constipation and bloating, which make pain worse.”
#health #pain #women #disease #foods #dairy #meat #plantbased #endometriose
https://www.theguardian.com/society/2025/apr/05/major-endometriosis-study-reveals-impact-of-gluten-coffee-dairy-and-alcohol?CMP=Share_iOSApp_Other
In case it was missed in the post above, this is my updated article:
https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/
My doctor predicts I will die if I don’t leave soon.
I need a solid, safe, home I can go to and recover to at least a stable baseline. It’s not full recovery, but it’s better than a slow death.
Help please
#PwME #LongCovid #MECFS #Hypothyroidism #ChronicIllness #Neisvoid #Abuse #Housing #Dysautonomia #SocialWork #MedMastodon #PWLC #MutualAid
#HumanRights #Press #Housing #Journalism #MECFS #SevereME #Abuse #Neglect #MutualAid #Narcissist #Psychopath #MCAS #MCAD #Endometriosis #ChronicPain #CostOfLivingCrisis #Melbourne #Australia #DomesticAbuse #DV
@chronicillness @longcovid @neisvoid
@disabilityjustice
@disability @socialwork
@dysautonomia @mutualaid
@mecfs
@chronicpain
@mcas
@australia
@melbourne
This is SO important, for the mental health of millions of women:
I got *much* better care for #endometriosis 30 years ago - because it was a new area of reaearch - than women get now.
Women whose doctors insist it's "normal" to book sick days every month for pain, fainting, etc. (It's NOT).
Women gaslit to feel crazy or weak as they persist in asking for help with agonising pain, weakness and infertility for years, decades.
I hope these tests become available soon
https://floss.social/@rdnielsen/114270708020735976
Four new methods being developed to rapidly diagnose endometriosis:
https://www.sciencefocus.com/comment/endometriosis-underdiagnosed
"Currently, a diagnosis takes, on average, almost nine years and that figure is increasing." (!!!)
Me at ER for cardiac issues
Dr: “Could you be pregnant?”
Me: “No I had a hysterectomy”
Dr: “You look too young for that? Are you sure?”
Me: “I’m confident”
Dr: “I think you might be confused. Maybe it was your appendix.”
Proceeds to order pregnancy test
I’ve had this interaction more times than I can count
Healthcare workers think I’m “too young” to have had a hysterectomy and automatically assume I’m confusing my womb with another organ.
They ask endless questions, only to end up doing a pregnancy test anyways
Perhaps there are patients who confuse their uterus for their appendix, but I would imagine that’s exceedingly rare
The battle I went through to get my hysterectomy was long and arduous. It involved many physicians lecturing me about how I would never be able to have children
Asking insensitive questions like:
“Don’t you want to be a Mom?”
“You might want biological children, many women do”
“What happens if you meet your dream man and he leaves you for being barren?”
You don’t have to endure this type of insulting and misogynistic third degree to get your appendix or gallbladder removed.
They inform you of the surgical risks, you consent, the end.
There’s simply no plausible way to confuse the removal of a WOMB with an appendix
Despite these obvious facts, I’ve had countless doctors assume I’m wrong. That I couldn’t possibly have lost my uterus and it must have been something less important.
I’ve even had “patient CLAIMS hysterectomy”’written in my chart.
Why someone would lie about something so easy to prove or disprove is beyond me.
The end result is always a delay in care while we argue and then wait for an unnecessary pregnancy test which always comes back negative.
Surely we can do better?
I understand that doctors must have a degree of skepticism, and that the price of missing a pregnancy can be incredibly high.
I’m not opposed to them running a pregnancy test if that’s what they feel they need to do.
I am opposed to the delays and gaslighting
It was traumatic to lose my uterus at a young age. The healthcare workers who inundated me with misogynistic questions & put a hypothetical man before me and my health? They didn’t make it any easier.
I feel that trauma all over again whenever I’m questioned about pregnancy
I wish we could endeavour to either TRUST our patient, or just run the pregnancy test without all the unnecessary and (often) rude comments.
I don’t object to the test, I object to the way I’m treated leading up to the test.
Patients know their body best. We know the difference between a womb and an appendix. We know when we’re being talked down to and mistreated.
It causes trauma. Makes us less likely to trust the provider and far less likely to seek care in the future
Please treat your patients with the dignity they deserve. Don’t judge them on how they look, the chronic illness or disability they have or their gender or sexual orientation. Listen to them. Work with them. Let them be a partner in their care.
We can do better together /end
After the hysterectomy I also had a post op complication that was ignored by the ER three times. I had a life threatening internal bleed, but was sent home without tests because they thought I was “exaggerating”.
We MUST listen to patients. I only survived because my accidental advocate stepped up
https://www.disabledginger.com/p/my-most-dangerous-er-experience-and
“What we've shown in this paper is that the epithelial cells can communicate with the macrophages,"… "Our hypothesis is that their cross talk potentially provides an environment that's conducive to the development of the disease."
#Endometriosis #Science #ReproHealth #MedMastodon #ObGyn
https://medicalxpress.com/news/2025-03-hormonal-treatment-endometriosis.html
If you use Instagram (or if you want to click on this anyway) this 19 year old woman’s story regarding seeking care for endometriosis is heartbreaking. She can’t to get a hysterectomy because doctors are concerned she may change her mind about babies later, because misogyny tells them all women want babies & if we don’t we’re broken but we may get better later. She’s a lesbian and she’s infertile anyway. She knows she doesn’t want babies.
But I was so impressed with her steady speech and poise telling her story. I was a fidgety, fast talking, nervous wreck last year when I did it, and all my trauma from being denied sterilization is in the past. She’s still in it.
Glyphosate poses risks to female fertility and reproductive health, study says https://www.byteseu.com/832315/ #Cancer #endometriosis #EPA #glyphosate #Health #herbicides #hormones #Infertility #ovaries #pcos #pregnancy #PrimaryArticle #ReproductiveHealth #Science #uterus #weedkiller
Hola Titánicos, cada 14 de marzo se celebra el día mundial de la endometriosis, una enfermedad poco conocida a pesar de que afecta a 190 millones de mujeres en todo el mundo, lo que equivale al 10% de la población femenina.
https://somosdisca.es/dia-mundial-de-la-endometriosis-2025/
#diamundialdelaendometriosis #endometriosis #dolor #dolorovarico #dolormenstrual #lareglanodueletanto #dolorcronico #mujer #mujeres #mujer #dolorymujer #endometrio #poblacionfemenina #el10% #discapacidad #Disability #disabilities #disca #visibilidad #cuidados #diagnostico #tratamiento #tratamientoprecoz #titan #titanico #titanicos #somosdisca #gentetitanica
So... moving on from #endometriosis, then chronic #pelvicpain, we're now looking at Central Pain Sensitisation. Fuck #chronicpain
Please SUPPORT #HB606 Right to Medically Advisable Sterilization
To support in person, please come to the committee hearing:
Date: Mar 12, 2025
Time: 09:30 AM
Legislative Office Building
Room 202-204
33 North State St
Concord, NH 03301
To log remote support or send remote testimony, go to:
https://gc.nh.gov/house/committees/remotetestimony/
And enter the following information as requested:
Date: MARCH 12
Committee: HEALTH, HUMAN SERVICES AND ELDERLY AFFAIRS
BILL: HB 606, 9:30am
You would be commenting as a member of the public, speaking for yourself.
Choose: SUPPORT
If you would like to include personal testimony with any links to support your position you would upload an attachment or type into the text box at this time.
Click SUBMIT
To read the bill as introduced:
https://gc.nh.gov/bill_status/billinfo.aspx?id=889&inflect=2
The amendment reads as:
329:31-c Right to Appropriate Reproductive Care for Medical Conditions.
I. If a patient who is 18 years of age or older has a medical condition for which a medically advisable course of treatment or precautionary measure may include a procedure or medication that leaves the patient sterile or unable to have children, the physician shall not deny the treatment on the basis of age, number of children, marital status, or the physician's speculation of the patient's reproductive intentions contrary to the patient's statement. The physician may require the patient to sign an informed consent and waive all damages from the procedure related to sterilization. A physician who violates this right may be disciplined pursuant to chapter.
II. A patient who has signed an informed consent or a waiver and proceeds with appropriate reproductive care for a medical condition shall have no civil right of action against any health care provider or health care institution on the basis of the patient being rendered sterile or unable to have children. T
his paragraph shall not provide immunity against any purposeful, reckless, or negligent act of a health care provider or health care institution.
III. For purposes of this section, "medical condition" means any disease, disorder, syndrome, symptoms, genetic predisposition or family medical history, or the state of being medicated, that either affect the reproductive system, or make reproduction not advisable either for the medical interest of the patient or for potential children. "Appropriate reproductive care for a medical condition" shall include the following: a hysterectomy (uterus), oophorectomy (ovaries), orchiectomy (testicles), salpingectomy (fallopian tubes), endometrial ablation, or medications that may affect fertility.
2 Effective Date. This act shall take effect 60 days after its passage.